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5 Things You Need to Know...

Published on 23 November 2017 back to previous

October was probably the busiest months of our year so far, to the extent that it was hard to limit this article to just 5 things! But we just about managed! Here are the top 5 things you need to know…

1. Three years of work with the European Patient Forum’s Working Group on Access to Healthcare is drawing to a conclusion with the launch of the Roadmap due to take place in December. In October, we worked to finalise the Roadmap and plan for a meeting with the EU Parliament. We are very excited by the potential of the Roadmap to bring together patient groups and advocates across Europe to speak out with a single voice about access to treatment and care on the continent. Look out for more in December!

2. Following our announcement last month that we are expanding into digestive cancers, we have been busy developing our oesophageal and gastric cancer plans. One of our first major projects in the area will be a patient survey to identify key unmet needs; we start recruitment later this year.

3. We held a focus group in Munich to start planning for European Colorectal Cancer Awareness Month (ECCAM) in March 2018, and to discuss how we can raise awareness and best support colorectal cancer patients and carers. Some very creative ideas came out of this meeting, which we look forward to sharing soon in the lead up to ECCAM!

4. We attended a very energising meeting organised by Celgene who brought together over 100 patients and advocates with senior colleagues in their offices in Boudry, Switzerland.  It was an excellent opportunity to network with other patient stakeholders and have a constructive conversation with a key member of the pharma industry.

5. We participated in an ESMO training workshop for advocates on science. This gave us an excellent understanding of the Magnitude of Clinical Benefit Scale (MCBS), a standardised, generic, validated approach to stratify the magnitude of clinical benefit that can be anticipated from anti-cancer therapies. It will mean that comparisons between medicines can be more easily reached, helping us all to understand the treatment options better.
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